Institutes

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Institutes at the SAHM annual meeting are three-hour sessions (with a 30-minute break), typically with multiple presenters. These sessions allow added time for a more in-depth examination of a particular subject in the field of adolescent medicine or health. They are intended for hands-on training, though they may also employ a variety of other educational formats: lecture, case-based presentation, panel discussion, or small group work.

Wednesday, March 6, 2019 Friday, March 8, 2019


Wednesday, March 6 - 2:30 - 6:00 p.m.



Developing and Implementing mHealth Interventions to Improve Health Outcomes of AYA Living with Chronic Health Conditions: Lessons Learned and Practical Advice
Lisa Schwartz, PhD1; Sandra Amaral, MD, MHS1; Lori Crosby, PsyD2; Katie A. Devine, PhD, MPH3; Nadia Dowshen, MD, MSHP1; Linda Fleisher, PhD, MPH1; Emily M. Fredericks, PhD4; Micah Hughes5; Laurie A. Maurer, PhD, MA1; Alexandra Psihogios, PhD1
1Children’s Hospital of Philadelphia; 2Cincinnati Children’s Hospital Medical Center; 3Rutgers, The State University of New Jersey; 4C.S. Mott Children's Hospital, Michigan Medicine; 5University of Cincinnati
 
Track: Clinical Advances

Description: Mobile health (mhealth) tools (apps/text-messaging/web-based interventions) are increasingly used as modes of intervention for health promotion and disease management with AYAs. Mhealth is especially salient and effective with AYA given they are digital natives and require additional support to manage chronic disease and increase self-management skills during the transition to adulthood. As more research develops and tests these tools, there is a need for more description and transparency about the challenges of designing and testing mHealth interventions with the same rigor expected of in-person behavioral trials. Therefore, we propose an institute that shares collective knowledge and experience developing and implementing mHealth interventions with AYA to impact self-management and health promotion, and ultimately improve psychological well-being and physical health. Our goals are two-fold: 1) to inform attendees about processes and challenges of mHealth interventions, and 2) to provide lessons learned and practical advice. We aim to provide information based on our own experiences to help better prepare attendees for planning their own mHealth interventions and to improve the quality and rigor of mHealth research among AYA. This proposal addresses the SAHM 2019 theme of promoting psychological well-being and physical health among AYA by providing details of and guidance about the development and use of innovative mHealth interventions that have the promise to successfully aid AYA in increased disease management and improved overall well-being.

Educational Objectives:

  1. Describe challenges to designing and implementing mHealth interventions for AYA health promotion and disease self-management.
  2. Describe considerations for enhancing rigor in mHealth trials.
  3. Discuss developmental and cultural considerations for optimizing mHealth interventions.
Faculty Expertise: Presenters are medical school faculty with extensive mHealth experience, including leading federally-funded mHealth trials with AYA living with chronic health conditions. Dr. Schwartz, Dr. Dowshen, and Dr. Fleisher co-lead CHOP’s mHealth Research Affinity Group funded by the CHOP Research Institute. Presenters and their most salient mHealth interventions are described below: Lisa Schwartz, PhD and Alexandra Psihogios, PhD: app for cancer survivors with tailored text messages to support uptake of survivorship care plans. Sandra Amaral, MD: web-based portal with text messaging and financial incentives for adherence for AYA with kidney transplant or spina bifida. Lori Crosby, PhD: Sickle Cell Disease self-management app. Katie Devine, PhD: app to increase physical activity in cancer survivors. Nadia Dowshen, MD: app for medication adherence and engagement in care in AYA with HIV. Emily Fredericks, PhD: tailored web-based and text message intervention to increase adherence among AYA with liver transplant. Linda Fleisher, PhD: development of web-based patient decision making and integration of digital health into practice. Micah Hughes: advocate who co-developed app for adolescents and young adults with sickle cell disease. Laurie Maurer, PhD: research associate working with CHOP’s Office of Digital Health.
 



SAHM Research and Mentoring Forum: Converting your Cool Idea into a Fundable Research Question
Maria E. Trent, MD, MPH1; S. Jean Emans, MD2; Elizabeth Miller, MD, PhD3
1Johns Hopkins School of Medicine; 2Harvard Medical School/Children's Hospital Boston; 3University of Pittsburgh School of Medicine
 
Track: Research

Description: The SAHM Research and Mentoring Forum was developed as an initiative at SAHM in 2011 to strengthen research careers in adolescent health by creating a formal research mentoring network for scholars early in their careers. This forum aligns with SAHM's strategic plan to develop a new generation of adolescent health researchers who have the capacity to conduct research that addresses health disparities in health care delivery and health outcomes among adolescents and emerging adults around the globe. Through this collaborative effort, selected fellows and junior faculty have participated in a mentoring seminar. Each participant is carefully paired with a senior investigator (SAHM member) to augment their research and professional development. Research is essential to ensure that evidence-based, clinical and health policy prevention and intervention strategies are in place to optimize adolescent health. This year we will select new participants seeking mentorship and invite the current cohort of mentees to present their research in progress with lessons learned and to receive additional feedback from colleagues and mentors regarding their work. New participants will be selected through an application process and also matched with experienced SAHM researchers for at least one year. Successful interdisciplinary team-based science requires effective communication. The focus of this year's interactive training component will be on converting a “cool” research idea into a fundable question and grant application, a critical first step for junior investigators to hone research ideas into manageable aims, and to conduct high quality research and scholarship that are adequately resourced.

Educational Objectives:

  1. Convert a research idea into to a fundable question with structured specific aims
  2. Pre-identify strategies to avoid and overcome common challenges faced by junior researchers while developing a research program
  3. Execute a successful mentorship relationship with a senior investigator in adolescent health
Faculty Expertise: Our team has been working with trainees through the mentoring forum since 2011. We are all investigators who have received federal funding and/or have served as training directors in Adolescent/Young Adult Health Fellowship programs. Our Adolescent Health topical expertise is broad, complementary, and builds on our collaborative relationships. We recruit senior researchers in SAHM to pair trainees and bolster the in-session experience for learners. Past sessions have been well received and trainees have had positive outcomes as a result of their participation. Blood EA1, Trent M, Gordon CM, Goncalves A, Resnick M, Fortenberry JD, Boyer CB, Richardson L, Emans SJ . Leadership in adolescent health: developing the next generation of maternal child health leaders through mentorship. Matern Child Health J. 2015 Feb;19(2):308-13.
 


Friday, March 8 - 2:15 - 5:45 p.m.



Supporting Cross Cultural & Transnational Adolescents, Young Adults & their Families: Clinical, Organizational, & Legal Perspectives

Maria Veronica Svetaz, MD, MPH1; Abigail English, JD2; Anisha Abraham, MD, MPH3; Chris O’Shaughnessy, BA4
1Medical Director, Aqui Para Ti (Here For you)/ Between Us Faculty; 2Center for Adolescent Health & the Law; 3University of Amsterdam; 4Youth Compass
 
Track: Public Health/Advocacy

Description: With increased globalization, political upheaval, and violent conflict, millions of adolescents, young adults and families are in transit or living in countries other than where they were born. Some have been displaced, are refugees, or are seeking asylum; others have moved as economic migrants for work. Many experience violence, persecution, or discrimination in their countries of origin, during transit, upon arrival, or while living in new settings. Even those spared the most obvious dangers confront major physical, emotional, and legal challenges. Ensuring that these young people and their families receive optimal care and support is an important priority for clinicians and advocates. This institute will address the challenges facing cross-cultural, transnational adolescents, young adults, and their families from a multi-disciplinary perspective. Clinical approaches will be explored that can address challenges, support strengths, encourage resilience, and promote physical and psychological well-being. Organizational strategies to incorporate cultural sensitivity and increase understanding of the cultural realities of young people and families who are living transnational lives will be proposed. Legal and policy protections that are available in international law or the laws of specific countries, but often poorly implemented, will be reviewed. The institute will offer the combined expertise of physicians who have cared for immigrant, refugee, transnational, and cross-cultural youth; a lawyer with expertise on U.S. and international laws that can be used to protect these youth; an author/ expert on meeting the challenges of growing up in a globalized world; and a panel of youth who will present their cross-cultural experiences.

Educational Objectives:
  1. Describe the unique characteristics and experiences of cross-cultural and transnational adolescents, young adults and their families, and review approaches to providing optimal comprehensive care in a clinical setting.
  2. Explain the importance of understanding culture and identity in youth development,and propose strategies for incorporating cultural sensitivity into an organization or institution.
  3. Identify laws that provide a basis for protecting transnational adolescents and young adults including refugees and asylum seekers.
Faculty Expertise: Maria Veronica Svetaz, a family medicine and adolescent medicine physician, created a Family Centered program to respond to Latino immigrant and refugee youth’s needs. She is the current Chair of the SAHM Diversity Committee. Abigail English is a lawyer and advocate for the rights of vulnerable young people, focusing on financing of care for adolescents and young adults, consent and confidentiality protections, sexual and reproductive health care, and human trafficking. Anisha Abraham, is a pediatrician and adolescent medicine physician based in Amsterdam, Netherlands. She has worked with cross cultural teens in the US, Europe and Asia as a clinician, military provider, and consultant to international organizations. Christopher O’Shaughnessy is an expert on “Third Culture Kids,” the effects of globalization, and building community and increasing empathy. Chris’ book, Arrivals, Departures and the Adventures In-Between, has been used in teaching cross-cultural skills and instilling global awareness in a variety of disciplines.

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